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Hi, after a colonscopy I was advised that I probably have cancer.
After this shock statement on 11Dec there has been no contact apart from me badgering my doctors surgery to see if there has been any developments.
I was told there was an MDT (Multi Displinary Team) meeting on Monday last and still no contact as to what the next steps are, what I should be doing, eating, drinking or even thinking.
I have now been told the biopsies taken can take 4-5 weeks to come back so I have no idea if the MDT are going to recommend interim treatment or indeed they are also waiting for the biopsy results to come back.
Is that right that a potential cancer patient has to wait 4-5 weeks before treatment actually starts and indeed gets any form of advice - I am sure I will be told that the timeline is right due to the testing involved however is it morally right and indeed is it right that a potentially life threatening illness is left unchecked for a further month whilst tests are being waited on.
Sorry for the rant but the timelines do not compute...any advice would be much appreciated.
Welcome to Cancer Chat. As a cancer survivor of eight years I cannot complain on any score, the treatment in all areas of the NHS has been exemplary from investigations through treatment and follow up for my breast cancer.
You may have read my post of yesterday - Colon Cancer, my husband had colonoscopy yesterday and given the dignosis of cancer, subject to confirmation from biopsies taken, the results should be available in two weeks because of holidays. The consultant is 99% sure it is cancer and from the scan it certainly looks horrible. In the meantime a CT scan is being arranged with an over night stay in hospital, this is to iliminate any other cancer areas in the body.A MDT meeting is scheduled for 7th January when it is expected that all results will be to hand. All things being equal surgery will the be scheduled, if not then discussions will take place as to further/other lines of treatment. It is worth mentioning that this has all happened since a GP visit on 7th December.
I did not accompany my husband to the hospital but after he returned home I had a telephone call from the Colon Cancer Nurse Specialist to make sure he had arrived home safely and that I/we fully understood the procedure and ongoing arrangements.The time scale for this is just over two weeks and by the time of the MDT meeting in January it will be one month fro visit to GP.
If this NHS Trust can do it so can yours. My advise - contact GP again and demand answers or change your GP, contact the consultants secretary and demand to know what is going on, even requesting the consultant to contact you, make contact with the colonoscpy clinic and speak to the nurse specialist there. Because of the holidays there is not much time to achieve anything but start now and continue after the holidays. There are other ways open to you but at the moment I have given you somewhere to start. Best wishes Rodis.
Hi Tony, I can fully understand how frustrated and angry you must be, to be told you MAY have cancer and then hear nothing from anyone is awful. I was diagnosed with head and neck cancer in 2007, after a deep biopsy I waited 3 weeks for the results another week for the MDT to meet and another week to be called in and told what treatment they were going to do. During this time it became obvious that it was going to be me, or more precisely my wife, that had to get the information from them rather than them give it to me. I have to say that when the treatmant plan had been agreed everything moved very quickly indeed. I think that the MDT will only discuss yor case once they have all the results etc in front of them and although it may seem a long time I suppose it's better to get it ( treatment ) correct rather than tell you something that proves wrong in the future. However, this should not stop them from communicating with you and keeping you informed at all times. Rodis has given you some good advice, call your GP, the Hospital or anyone connected with your case and keep calling till you get your answers. Good luck and try to enjoy the holidays as best you can.
Further to my recent post - today we were contacted by the specialist nurse to give us a timetable of events. Admit to hospital on 10th January for CT scan on 11th January. MTD meeting on 14th January to access and discuss the results of biopsy and CTscan and decide on treatment. 20th January meet with consultant and specialist nurse to be advised of treatment plan. This timetable is slightly later than originally planned due to delay in organising the CT scan but in all ways I feel very acceptable even for a cancer patient. Rodis.
Rodis, thank-you for your experience and common sense. I was blinded by fear and you put them into perspective. I have contacted the patients advocate at chesterfield royal hospital to request assistance in gaining an update and left a further message for the GI secretary. I will make a further appt with my doctor who I have absolute faith in to discuss my interim treatment, pain relief and aneamia.
Thanks again and I hope to keep in touch and assist as I gain experience.
I almost forgot, the timelines after looking through them are similiar to most I have read about. I had my investigations already planned after initial consulation with the gastro-enterologist so have already had the colonoscopy, cystoscopy and CT scan - the MDT was on Monday so am waiting on the outcome.
I will be a little more patient.
Unfortunately my persistance paid off and I had a call from the Gastro Enterology secretary and then the consultant on Christmas Eve. It was confirmed that I have Colon Cancer as the results were positive from the biopsies. The next step is a review with the snr surgeon and oncologist on Monday 04Dec.
Thanks for the support so far. I will try and help others all I can and am sure I will gain from the valuable experience on this form.
Wish me luck!
dear tony thanku very much for taking the time to reply to my mail.ive only had a laptop 3wks and havent learnt how to use it yet.so i hope u get this.life seems so unfair tony and i can give advice out but cannot apply it to myself.you are right when u say its too long to wait for news or treatment.infact i think it is very very wrong.take care tony .hope to hear from you agiin.thanks
Yes I got your response and good luck with the laptop, once you get the hang of it you will be fine.
It is often easier to give others advice and not follow it yourself, I totally get that
Stay strong and definately keep in touch.
dear tony as i told u before i am a novice with computers and i have just read that u were diagnosed already! i wasnt sure how to turn the pages up! anyway i would like to wish u all the luck in the world. you know what tony lets give it our best shot i mean that for everyone in these pages. its nice to know that we are all going thro this together.take care.hope to hear from u soon.
What are you on about...actually I do not want to know....
I have been diagnosed as having Cancer of the Colon and do not want to read this **** - I am sure that whatever crusade you are on has a purpose but harranging people on an anti- government mission will only alienate people and not help them at all!
Please do not comment further on my post.
Thanks for posting.
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I have just read this thread.
I am sorry to hear this. I can imagine it has been quite a shock for you and your family.
As I was saying in my own thread, try and stay positive.
At least you have got the ball rolling and steps will be taken to assist and aid your recovery.
I do believe that positive thinking is the key.
We all share our feelings/ailments on here which is good.
Hello my name is maritima,have just read about you,it seems like a long time to wait,where abouts do you live as it seems to be a lottery game as to how quick you are diagnosed,seen by specialist and treatment plan set in motion.
Get back to me on that one if you can,maybe l can help you,my father is specialist surgion in cancer and l can ask his advice on this,l cant get you treatment but can get as much help as possible and contacts,try not to stress to much as that will not help you.