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129,617 Views 609 Replies Last post: Dec 29, 2009 6:15 PM by R123 RSS 1 2 3 ... 41 Previous Next
135 posts since
Oct 3, 2008
Currently Being Moderated

Mar 13, 2009 5:59 PM

Lymph Node Swellings for 12+ months

Im a 28 year old who is in pretty good health but I've been going through a very rough patch. I've been having problems with lymph node swelling and a sensation of a lump in my throat for a long time (over a year and half). The Lymph nodes have been swollen for a very long time and after I found new ones coming up I went to the doc who just told me to stop worrying. A month later more came up so I went to see another doctor last week who sent me for the usual FBC blood tests. Thankfully these came back normal but she informed me that Lymphoma which is what Im being tested for does not always show up in the blood tests. Is this right???

 

She is sending me to see a Hematologist for them to give me the full examination, scan and possible biopsey but having the nodes grow and some of them have become hard like kidney bean sized rocks I am very nervous at the moment. The nodes are in my neck (2 on the left and 2 on the right), 1 under my chin and 2 in my groin area (left and right side) so in total I have 7 that are swollen and after 1,000mg of Cipro antibiotic tablets for 2 months last year they have not changed and in fact more have come to the surface.

 

What I am wondering is if my bloods came back as normal is this a good sign and has anyone else on here had normal blood tests with hard swollen lymph nodes but have been diagnosed with a form of Lymphoma. I have been getting night sweats, more severe fatigue than I've ever had in the past and weight loss (around 5 lbs in 2 weeks)

 

Any help or advice would be greatly appreciated.

 

J.B

1,438 posts since
Sep 16, 2008
Currently Being Moderated
1. Mar 13, 2009 6:12 PM in response to: JJ08
Re: Lymph Node Swellings for 12+ months

 

Hi Jay

 

 

It's Judith and you know where to find me.  Also, there are other people here on this site who can probably help. Thought you'd sorted things but obviously time to take action. There is someone else on this site who is going through this but don't alarm yourself as if it is anything sinister then there are lots of things that can be done. Is partner OK?? E-mail me ASAP and I'll try and help. I look forward to hearing from you.

 

 

Love, Judith

 

 

1,438 posts since
Sep 16, 2008
Currently Being Moderated
3. Mar 13, 2009 6:59 PM in response to: JJ08
Re: Lymph Node Swellings for 12+ months

 

Jay - the lady is called Kim on the same subject area. I've already asked her to post to you.  She has had inaction from the medics and has lost around 5 stone. I'm NOT saying your problems are the same but she may be able to help.  If I lost 5 stone I wouldn't be here because I'm only 8 stone......

 

 

Judith

 

 

369 posts since
Feb 20, 2009
Currently Being Moderated
5. Mar 14, 2009 1:51 AM in response to: JJ08
Re: Lymph Node Swellings for 12+ months

 

hi jj08 its kim just reading what you posted ive struggled with GP's and consultants and at the minute im still fighting i started out at ENT because i had 5 swollen lymph nodes on the left side of my neck and 2 either side of my groin but of course ENT deal with nothing except ENT they did FBC and they were clear except raised white blood cell count they then decided to scan my neck which showed 2 of the lymph nodes had grown inwards through the '' cervical'' muscle so ENT decided to operate for biopsy. I went back for results and they told me they were reactive so they showed slight changes but they weren't malignant my weight loss at this point was sustained at 8lb per week and i was constantly eating to try and put weight on they decided to tell me that although one was reactive the others may not be which of course left me confused they then refferred me to general medicine because even though my thyroid was healthy on all tests they thought it was that in the meantime i threw a hissy fit with the PALS depatment at the hospital and a meeting was held regarding me on the wednesday and i had an appointment on the thursday morning. I was examined again told thyroid healthy AGAIN they were concerned by the lymph node in my groin which is 4cm they refferred me to haemotology saying worse case scenario lymphoma or leaukemia. Also had more blood tests, water samples and refferal to general surgery and for full CT scan. Got the heamotology appointmnet but nothing for the others haemotology wanted the biopsy before i saw them but general surgeon could not be contacted so after another heated telephone call threatening national papers etc i got the appointment through for CT and general surgeon within 2 days of each other. Haemotologist 'grew' urine sample and found unrelated kidney infection and also a huge lymph node swollen under right side of  my jaw and under my left armpit but said he could do nothing until groin biopsied and CT scan had been done. General surgeon decided to operate to remove all lumps in groin for biopsy which i have next wednesday and he found another lump under right armpit and 3 more lymph nodes in right side of neck. I know its hard to try and advise but im showing weightloss, severe fatigue ( to the point i nearly fall asleep driving) and hot sweats and chills. Can i ask the night sweats are they to the point of windows steamed and bedding as though you've wet the bed? its just i thought i was having night sweats because i wake up around 3 am every morning absolutely pouring in sweat to were i think im going to collapse but they ask about bedding being soaked etc. i bruise easily and my gums bleeding alot and i must say i have googled everything i can regarding lymphoma and leaukemia and it doesnt help and because of the way the consultants are you think your losing your mind and its hard to fight them but if your getting to the point you need to be hypnotised to sort out your thoughts you need to push them i had to tell them that if they didnt find the cause of the weight loss i would die anyway within 12 weeks i would have weighed 5st. i dont mean to scare you at all so please dont think i am ive hit a brick wall at all corners my lumps started around 9 or 10 months ago and the ones in my groin i got told by GP they were fatty lumps. my post is called terrified about cancer ive been though what i presume to be all the phases of dealing with the prospect of what it could be but ive got to the point now that i have to let my life take the path is supposed to and deal with it as it comes i strongly believe that everything happens for a reason and if its meant to be its meant to be i really do feel for you at the minute but you really need to fight for the appointment if your really concerned the PALS departments are usually quite helpful. As you rightly said weightloss is one of the signs of cancer but it can also be a sign of other things viruses etc usually a sign of extreme weightloss is over 10% of your overall bodyweight i have lost 35 % of mine i now weigh 8st i know ive rambled on a bit but i really believe that you have to strengthen your mind because the consultants are evasive with results and possibilities they dont understand that we have all googled what it could be and are terrified of it but if your terrified of it and it turns out for the worst ( which it wont x) then its won whatever it is you cant let it do that  please please fight for the appointment if just to put your mind at rest. im currently under 4 differant departments at the hospital and i know for a fact ENT suspected cancer and i now know thats what she meant when she said they might remove another its so frustrating but the people on hear are a great help with support and advice goldenbird is fantastic along with a few others. Can i ask how old you are? you see im only 22 and you get told you're too young for any kind of cancer which of course is wrong i have lymphoma, cancer of the tongue and cancer of the colon on both sides of my family  and afetr seeing my grandad go through it when i was 11 i was terrified for my kids then i realised i needed to be strong for them i think my youngest was starting to pick up on my feelings he was clingy etc and my eldest cried when he saw the stitching from my first biopsy its an awful awful process to go through and do so hope you can have an answer sooner rather than later please if you want to ask me anything just leave a message on my post

 

 

hugs

 

 

 

 

 

kim xxxxxxx

 

 

369 posts since
Feb 20, 2009
Currently Being Moderated
6. Mar 14, 2009 1:56 AM in response to: kim2486
Re: Lymph Node Swellings for 12+ months

sorry i can see youre 28 i had the feeling of a lump in my throat more so when i lay down i felt i was being choked and it turned out to be nothing it seems to have disappeared since they removed the lymph node for biopsy xxx

369 posts since
Feb 20, 2009
Currently Being Moderated
8. Mar 14, 2009 12:18 PM in response to: JJ08
Re: Lymph Node Swellings for 12+ months

 

hi jay dont worry if they opt for biopsy then can do a fine needle aspiration its called where you are awake under local and they do the needle thing. they may well do that if your concerned or have phobia's about being put under im so soft when it comes to doing things whilst im awake i refused c section with both my kids unless it was necessary wouldnt touch the needle in the spine thing i hate needles so i was relieved when general surgeon changed his mind about doing it under local lol the weight loss is awful especially when it hurts to lie down because your ribs are sticking out i was at one point a size 8 before i had kids but i was normal my ribs didnt stick out and i still had a double chin lol i also strated getting pains in joints but starting at my hips and spread all the way down to my toes it is a horrible feeling but i have 500mg co codamol to ease it they great like horse tranquilsers lol i dont mind the ops its just walking down to theatre with a gown that is tied at the back but im still flashing to all and sundry because it's too big lol bet the trainee who was watching op got the thrill of his life or maybe the fright of his life seeing my backside lol oh and i think every trainee in the hospital has felt my groin, neck and armpits they all have a go embarrasing they always seem to be lads lol anyway good luck for the 16th i go in for op on the 18th i thought i may have made you panic with my babbling lol but it was early hours lol i'll be thinking of you on monday im sorry to hear about your anxiety and agrophobia but im glad to read your willing to fight not only them but yourself to get in for the appointment you seem to have been through the mill yourself with regards to your health sorry im rambling again,

 

 

thinking of you on monday

 

 

kim xxx

 

 

369 posts since
Feb 20, 2009
Currently Being Moderated
10. Mar 14, 2009 2:20 PM in response to: JJ08
Re: Lymph Node Swellings for 12+ months

 

i know what you mean i was so worried about my biopsy results i actually tried to read my own tarot cards lol needless to say it didnt work lol im sure people think im going mad i once got told if you have a problem ask a loved one a question before you go to sleep ( of course that is dead family) and you would dream the answer so i did every night for two weeks and got nothing lol just dreams about tidal waves lol but seriously dont worry your in the best hands with a haemotologist i thought ' what the hell can a blood specialist do for me '' when it turns out he was an expert in lymphoma shot me down in flames lol. It may well be a test as i said on my post ive done tears, depression and now ive realised it cannot change the outcome good or bad so what little energy i do have i cant waste on my own self pity because it wont help me either way we've just got to roll wiith the punches as they say and hope and pray for the best although it never looks good when we look at it ourselves and it always looks worse still when you get told nothing by a consultant  and you start to get paranoid as to why they haven't told you anything. stay positive it will help you mentally anyways and if it doesnt help just ring the complaints department throw a huge hissy fit and vent your frustration it always helps lol

 

 

i always find if i sleep during the day i dont wake up until the following morning lol i could sleep on a washing line lately lol

 

 

kim xxx

 

 

49 posts since
Jan 17, 2009
Currently Being Moderated
11. Mar 14, 2009 5:05 PM in response to: JJ08
Re: Lymph Node Swellings for 12+ months

Hi i am in a similar situation i have enlarged/swollen lymph nodes, 1 under my right ear on my neck and 1 along my collar bone on the left side. The lumps have been there since the begining of January. I have had 2 blood tests over the last month, first one came back normal but then when i phoned gp to talk to him he said my white cell count was slightly raised and said i might have some infection. I have been so tired and have had itchy skin on and off leaving a rash. I went to visit gp and discussed my blood results and told him i thought it should be investegated further as the lumps were still there and i was feeling really ****. My gp then said i should take another blood test to see if my white cell count had come down and he has referred me to see haematologist, my second blood test showed my white cell count had come down but i had some c reactive protein showing some imflammation. My gp said it was best i see the haematologist to get him to have a look at me. My appointment is Monday the 16th of March. I really hate not knowing what is going with me and i feel that finally seeing the specialist on Monday may provide me with the answers i am looking for. I hope you also get the answers you want and hope that you will begin to feel well again soon, i think that the more you worry about something the worse it will become. Take care and Goodluck for Monday.

1,438 posts since
Sep 16, 2008
Currently Being Moderated
13. Mar 14, 2009 11:37 PM in response to: mother10cat
Re: Lymph Node Swellings for 12+ months

 

Hello Mothercat

 

 

I think we've said stuff before on another thread but just wanted you to know that I'm glad something positive is going to be done and I hope that eventually your mind will be set at rest or some positive action will be taken.

 

 

I've talked with JJ08 several months ago and he is a good bloke.

 

 

Judith

 

 

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