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25,978 Views 20 Replies Last post: Oct 22, 2013 6:00 PM by starlight RSS 1 2 Previous Next
lynnderella 8 posts since
Jun 14, 2013
Currently Being Moderated

Jun 14, 2013 8:59 PM

Worried newbie, high grade dyskaryosis result.

Hi,

I happened upon your forum whilst Googling my results. I should know better, being a nurse working with Head and Neck cancer patients!

I am 37, have used oral contraceptives since I was 16, and 3 years ago had the implant placed. I have always had regular, normal smears, and the only symptom of note being irregular spotting which I put down to the implant.

This result of severe dyskaryosis came as a shock. I am fairly concerned, but have brushed it off to my husband (who is more worried), saying its pointless worrying until I have the colposcopy. Shame I can't take my own advice! Having read through some other threads, I am reassured that the procedures involved in further testing don't sound as bad as I imagined.

I am being tested for HPV, but am not wholy sure of the significance of this?!

I haven't told anyone, again, seems pointless until there is something to tell, so it's nice to have somewhere to sound off. Even if no one replies, or even reads this thread, a little weight has been lifted!

Thankyou for the space to write this down.

Lynnderella x

Annabel 765 posts since
Dec 23, 2012
Currently Being Moderated
1. Jun 14, 2013 9:28 PM in response to: lynnderella
Re: Worried newbie, high grade dyskaryosis result.

Hi Lynnderella,

Welcome to cancer chat. I am sorry to hear you are going through this worrying time.This is a great place to sound off as everyone understands the need for that at various stages.  I hope someone who has been through what you are going through comes along to give you support/help/advice.. Like you I too am a nurse and we behave just as any other people react except we don't always make good patients!!! Lol.

I wish you all the best with your colposcopy and other investigations. Let us know how you are getting on anytime.

Annabel.

Waterbabe77 127 posts since
Jan 17, 2013
Currently Being Moderated
2. Jun 17, 2013 9:43 AM in response to: lynnderella
Re: Worried newbie, high grade dyskaryosis result.

Hiya,

 

Hope you are doing Ok. I'm reading wiki and it says often dyskaryosis is caused by HPV so I'd imagine that is why they are testing you for that.

 

ANyway, welcome to the forum and feel free to come back whenever you need an outlet

 

x waterbabe

Verity7 7 posts since
Jun 21, 2013
Currently Being Moderated
3. Jun 21, 2013 10:37 PM in response to: lynnderella
Re: Worried newbie, high grade dyskaryosis result.

Hi

 

I am in the same position as you and it would be nice for me if we could keep in some form of contact and update each other as to how we are getting on.

 

I have posted an incredibly long post, I had a little verbal diaorrhea, it just felt so good to get it all out seemingly, which you can read and post on if you like?

 

I hope you are okay, and do keep us updated of your progress. x

Verity7 7 posts since
Jun 21, 2013
Currently Being Moderated
5. Jun 22, 2013 8:53 PM in response to: lynnderella
Re: Worried newbie, high grade dyskaryosis result.

Hi Lynnderella

 

Thank you for your message.  It took four weeks for my smear result to come back, then another two weeks for the colposcopy appointment to arrive, but it was four weeks later that I had the colposcopy done.  It has been a further five weeks (god they are flying by aren't they) since then and my appointment is on 10 July, only two and a half weeks, woo hoo, not!

I am soo scared, not of the procedure (I can handle that I hope) but of the aftermath and the results of the cold coagulation.

The waiting is the worst, I feel like I am on hold again whilst the world is moving round me.

But I do feel much better than yesterday, that was my lowest point by far, onwards and upwards now!

 

Verity7

Lawlaw29 4 posts since
Jun 25, 2013
Currently Being Moderated
7. Jun 26, 2013 2:37 PM in response to: lynnderella
Re: Worried newbie, high grade dyskaryosis result.

Hi guys I have also had problems I had a smear done last year and it came back that it was abnormal and I tested positive for hpv so had a colopsopy done and biopsy which came back a large ares was abnormal but didn't need treatment then waited 6months for check up which was 4th june the dr was so sure that everything looked fine and no changes and was sure id be back to normal smears with my gp well I got a letter yesterday saying my smear showed high grade dyskaryosis and that I need treatment its come as a complete shock and not really sure how I should deal with it im terrified I am a single mum of a 5 and 3year old. After treatment I can't swim for 4 weeks we're going on holiday 2 weeks afterwards:( is this high grade also classed as cin3??? It doesn't actually say in the letter but having read some bits online it seems only cin3 needs treatment

Moderator_Jenn 253 posts since
Jun 19, 2013
Currently Being Moderated
8. Jun 26, 2013 7:01 PM in response to: Lawlaw29
Re: Worried newbie, high grade dyskaryosis result.

Good evening Lawlaw29,

 

I wonder if you might find it helpful to speak to one of our specialist nurses about your letter.

 

They are available to speak to Monday - Friday 9am - 5pm on 0808 800 4040

 

best wishes,

 

Jenn

Cancer Chat moderator

Waterbabe77 127 posts since
Jan 17, 2013
Currently Being Moderated
11. Jul 3, 2013 9:10 AM in response to: lynnderella
Re: Worried newbie, high grade dyskaryosis result.

Hiya,

I hope the 4ww doesn't drag. And that there's good news at the end of it.

 

Thinking of you.

 

xwaterbabe

Lawlaw29 4 posts since
Jun 25, 2013
Currently Being Moderated
13. Jul 16, 2013 9:56 PM in response to: lynnderella
Re: Worried newbie, high grade dyskaryosis result.

Hi guys well had my appointment today wasn't too bad the injection hurt a little and felt weird but after you've had kids nothing is as bad as labour! Lol dr thinks she got it all but knowing my luck she won't have!! Will have results back in about 4 weeks so now play the waiting game again. Been for a really long walk tonight which I know not meant to have done and will probably feel it tomorrow but I not for one to sitting still and no exercise for over a week will kill me

Verity7 7 posts since
Jun 21, 2013
Currently Being Moderated
14. Jul 16, 2013 10:06 PM in response to: lynnderella
Re: Worried newbie, high grade dyskaryosis result.

Hi Lynnderella

 

How are things with you?

 

I have been through a bit of a rollercoaster over the last couple of weeks with not receiving letters and not getting calls returned by the hospital!

 

I finally went in on the 09 July and had the cold coagulation treatment for CIN3, it was uncomfortable but not painful, I would have to say trying to sit afterwards was more uncomfortable than the actual treatment!!!  Also it was no where near as bad as the original biopsy had been, I have had no bleeding or anything, more of an extended discharge but nothing like I had expected!

 

Due to other circumstances though, I have incredibly heavy periods, I am booked in for a hystectomy on 07 August.  This is a radical approach but because I had decided to be sterilised, and because of the CIN3 and also the heavy periods my consultant has agreed that this is the most appropriate course of action for me.

 

I hope that you are feeling well?

 

Speak again soon, Verity

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