Cancer Chat online community
I happened upon your forum whilst Googling my results. I should know better, being a nurse working with Head and Neck cancer patients!
I am 37, have used oral contraceptives since I was 16, and 3 years ago had the implant placed. I have always had regular, normal smears, and the only symptom of note being irregular spotting which I put down to the implant.
This result of severe dyskaryosis came as a shock. I am fairly concerned, but have brushed it off to my husband (who is more worried), saying its pointless worrying until I have the colposcopy. Shame I can't take my own advice! Having read through some other threads, I am reassured that the procedures involved in further testing don't sound as bad as I imagined.
I am being tested for HPV, but am not wholy sure of the significance of this?!
I haven't told anyone, again, seems pointless until there is something to tell, so it's nice to have somewhere to sound off. Even if no one replies, or even reads this thread, a little weight has been lifted!
Thankyou for the space to write this down.
Welcome to cancer chat. I am sorry to hear you are going through this worrying time.This is a great place to sound off as everyone understands the need for that at various stages. I hope someone who has been through what you are going through comes along to give you support/help/advice.. Like you I too am a nurse and we behave just as any other people react except we don't always make good patients!!! Lol.
I wish you all the best with your colposcopy and other investigations. Let us know how you are getting on anytime.
Hope you are doing Ok. I'm reading wiki and it says often dyskaryosis is caused by HPV so I'd imagine that is why they are testing you for that.
ANyway, welcome to the forum and feel free to come back whenever you need an outlet
I am in the same position as you and it would be nice for me if we could keep in some form of contact and update each other as to how we are getting on.
I have posted an incredibly long post, I had a little verbal diaorrhea, it just felt so good to get it all out seemingly, which you can read and post on if you like?
I hope you are okay, and do keep us updated of your progress. x
thanks for your messages, they mean a lot x
Verity7, I have just read your post, mine was almost that long til I cropped it!
I would defo like to keep in touch, its nice to know there are other people feeling the same way I do. It sounds like you are going through it, and have been for a while, so am happy to help even if its just sounding off!!
I am still awaiting the colposcopy, I rang on Monday and was told it could be up to 4 weeks for an appointment. I will keep an eye tho, the hospital has had a new computer system installed, and its not that reliable! And I know, cos I work there!!
Keep your chin up, and I am at the end of the keyboard
Thank you for your message. It took four weeks for my smear result to come back, then another two weeks for the colposcopy appointment to arrive, but it was four weeks later that I had the colposcopy done. It has been a further five weeks (god they are flying by aren't they) since then and my appointment is on 10 July, only two and a half weeks, woo hoo, not!
I am soo scared, not of the procedure (I can handle that I hope) but of the aftermath and the results of the cold coagulation.
The waiting is the worst, I feel like I am on hold again whilst the world is moving round me.
But I do feel much better than yesterday, that was my lowest point by far, onwards and upwards now!
I now what you mean, the waiting is endless! My postman already thinks I am stalking him!!
I go though days where I don't really think about it much, and then other days when its all I think about and feel sick. Just wish things would move on bit faster! Plus, I know how seriously slow the system can work, which only makes me more frustrated!
On the plus side, the house is spotless, the dogs legs have been walked off, and the husband is being fed well!! Keeping busy helps!!
I glad that you are feeling a bit better today, try to stay positive, and I will too, promise!!
Hi guys I have also had problems I had a smear done last year and it came back that it was abnormal and I tested positive for hpv so had a colopsopy done and biopsy which came back a large ares was abnormal but didn't need treatment then waited 6months for check up which was 4th june the dr was so sure that everything looked fine and no changes and was sure id be back to normal smears with my gp well I got a letter yesterday saying my smear showed high grade dyskaryosis and that I need treatment its come as a complete shock and not really sure how I should deal with it im terrified I am a single mum of a 5 and 3year old. After treatment I can't swim for 4 weeks we're going on holiday 2 weeks afterwards:( is this high grade also classed as cin3??? It doesn't actually say in the letter but having read some bits online it seems only cin3 needs treatment
Good evening Lawlaw29,
I wonder if you might find it helpful to speak to one of our specialist nurses about your letter.
They are available to speak to Monday - Friday 9am - 5pm on 0808 800 4040
Cancer Chat moderator
I got my colposcopy appointment for tomorrow, they gave me leaflet, and I am terrified now!
From what I have googled (wrong I know) I think high grade is cin3, but I could be wrong! It does say tho if you have a holiday its is sometimes possible to delay for a week or 2. Maybe ring the clinic when your appointment comes through. Chatting on here has helped, but until I know, I won't feel any better. I am tying to keep busy too, and am sure with 2 young children, that's not hard!
I will post tomorrow night on my experience, and if I get some answers to the above!
Big hugs xxx
Ok, colposcopy done! It wasn't pleasant, but not as bad as expected. My nurse was lovely and talked me through the whole procedure. The injecting of the local anaesthetic was uncomfortable, but not unbearable. And it was quick! I had a 2cm area of changes (cin3) removed with a large loop diathermy. 4 week wait for the results. I was shaky because of the local, but that didn't last long. And I was watching on a tv, until I saw my own blood and felt faint!! I had a little cry and a sleep, and feel so much better now, relief I think! The anaesthetic is wearing off now, and all I can feel is a vague cramp like sensation. And no bleeding yet, but she says its more like a mucky discharge.
I hope my positive experience of a worrying procedure helps ease any worries. And the colposcopy can be delayed for a couple of weeks if you have holidays planned!
I hope the 4ww doesn't drag. And that there's good news at the end of it.
Thinking of you.
I remembered that you had an appointment today, hope it went well hun.
I got my results today, CIN3 completely removed. Just got to have another smear in 6 months time.
Its like a huge weight has been lifted.
The whole experience has been traumatic, but I have had wonderful treatment by the nursing staff at my hospital.
I also want to say thanks to the people on here, strangers who offer support to the people who need it.
Love you all!
Hi guys well had my appointment today wasn't too bad the injection hurt a little and felt weird but after you've had kids nothing is as bad as labour! Lol dr thinks she got it all but knowing my luck she won't have!! Will have results back in about 4 weeks so now play the waiting game again. Been for a really long walk tonight which I know not meant to have done and will probably feel it tomorrow but I not for one to sitting still and no exercise for over a week will kill me
How are things with you?
I have been through a bit of a rollercoaster over the last couple of weeks with not receiving letters and not getting calls returned by the hospital!
I finally went in on the 09 July and had the cold coagulation treatment for CIN3, it was uncomfortable but not painful, I would have to say trying to sit afterwards was more uncomfortable than the actual treatment!!! Also it was no where near as bad as the original biopsy had been, I have had no bleeding or anything, more of an extended discharge but nothing like I had expected!
Due to other circumstances though, I have incredibly heavy periods, I am booked in for a hystectomy on 07 August. This is a radical approach but because I had decided to be sterilised, and because of the CIN3 and also the heavy periods my consultant has agreed that this is the most appropriate course of action for me.
I hope that you are feeling well?
Speak again soon, Verity