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6,404 Views 12 Replies Last post: Feb 3, 2009 11:29 AM by chuckl RSS
5 posts since
Jan 15, 2009
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Jan 15, 2009 1:18 PM

Head  and Neck treatments

Anyone  with head  and  neck cancer had  a full body scan?

18 posts since
Jul 14, 2008
Currently Being Moderated
1. Jan 16, 2009 12:25 PM in response to: kwwest
Re: Head  and Neck treatments

 

Hello Kwwest

 

 

I had a scan when I was diagnosed with oesophageal cancer but just head to upper torso was reported on, even though the whole body goes into the machine. I could well understand why some people feel claustrophobic.

 

 

Regards

 

 

KentishScot

 

 

5 posts since
Jan 14, 2009
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2. Jan 27, 2009 12:08 PM in response to: kwwest
Re: Head  and Neck treatments

 

Hello. Yes I had a PET scan about 10 months ago just before I had surgery on my mouth (squamous cell carcinoma between my front teeth). Unfortunately I am about to have another tomorrow as I have developed cancer in the lymph nodes on the right side of my neck. Let me know if there are any questions I can answer.

 

 

Christine

 

 

8 posts since
Sep 16, 2008
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3. Jan 27, 2009 6:27 PM in response to: Christine
Re: Head  and Neck treatments

 

Hi Christine,

 

 

Sorry to hear it's in your lymph nodes.  Best of luck tomorrow.  Where are you having your PET scan? 

 

 

Chuck.

 

 

_______________________

 

 

http://radiotherapy.blog.co.uk/

 

 

 

 

 

5 posts since
Jan 14, 2009
Currently Being Moderated
4. Jan 28, 2009 12:52 PM in response to: chuckl
Re: Head  and Neck treatments

 

Well thank you. It is OK - I'm not as traumatised about it as when I found out I had to have my front teeth and jaw bone removed the first time around. I had the scan done at the Wesley Hospital in Brisbane, Australia.

 

 

I will be going along to a specialist head and neck multi-disciplinary team at another hospital on Friday for them to put their heads together and decide my fate. It was very hard to diagnose that the SCC had moved to the lymph nodes - I even had to have two biopsies to get a result.

 

 

But, I would rather know the shape of what I am up against instead of walking around with a vague feeling that something was wrong (and getting worse) without anyone being able to tell me what it was.

 

 

Let me know if you want more information as am happy to discuss (and as I say, I'm not too emotional this time around).

 

 

 

 

 

Christine

 

 

Rodis 1,074 posts since
Jun 25, 2008
Currently Being Moderated
7. Jan 28, 2009 2:18 PM in response to: Christine
Re: Head  and Neck treatments

 

Hi Christine,

 

 

I wish you well with your forthcoming treatments etc. You give such a helpful and positive feedback from your experiences please continue to contribute to this thread as I am sure it will be useful to other members with similar conditions. Best wishes, Rodis.

 

 

5 posts since
Jan 14, 2009
Currently Being Moderated
8. Jan 28, 2009 9:58 PM in response to: Rodis
Re: Head  and Neck treatments

 

Thank you to both of you for your comments. In terms of cost in relation to the query where you can get full body scans privately, I don't know what it is like in the UK but in Australia these scans are very expensive and time consuming, so it seems to be the big one the doctors pull out of their pocket when things look nasty and they need to act. I know the one I just had was AUS $1,000, of which our Medicare system will give me back $900.

 

 

However, would you be under the treatment of a specialist? I am sure they would be sympathetic to the psychological trauma that you may have and put you up for a scan, even if it is just to help you to move on rather than to act upon.

 

 

The gland story told is interesting as I too had been told not to worry too much "they're within the realms of normal" as they got progressively bigger. I also had a lot of upper respiratory track infections after my surgery last year (I blame the endless antibiotics!) but just knowing how hard it is sometimes to definitively find the cells is incredible. I don't see how they could have hidden through CT scans and the first biopsy done. But there it is. So go for it if you have a suspicion of something is my advice and don't settle for compromises.

 

 

Best wishes. I'll let you know how I go tomorrow with the speed-dating with the doctors to determine my fate.

 

 

By the way, I would like to hear from you as to how you feel without those lymph nodes.

 

 

Christine

 

 

5 posts since
Jan 14, 2009
Currently Being Moderated
11. Jan 29, 2009 10:36 AM in response to: kwwest
Re: Head  and Neck treatments

 

Thank you again Kwwest - what is your name - seems strange calling you that. My doctor called tonight to let me know the PET scan showed there was onlythe cancer in the neck lymph nodes and nowhere else in my body. This has made me feel bouyant as I was concerned it may be elsewhere. Your story about the physical effects of the surgery and treatment are sobering, but then again, I have had to adjust to living with my lip not being the same on one side to the other and not having a lot of infrastructure in my mouth that I had this time last year! I'm sure we can cope with most of this stuff. It's just awful though how it takes over your life and those close to you. I hope you can get back to work soon.

 

 

Will let you know what treatment I have in store after having my speed dating event with the 15 doctors at the hospital tomorrow.

 

 

 

 

 

 

 

 

8 posts since
Sep 16, 2008
Currently Being Moderated
12. Feb 3, 2009 11:29 AM in response to: Christine
Re: Head  and Neck treatments

 

Hi Christine,

 

 

That is good news, and you'll be better off staying buoyant!! 

 

 

I was amazed to see the cost of a PET scan is AUS$1,000  In the UK (assuming you go privately) it costs at least £1,500!  Do the coversion on that and it's seriously expensive.  Typical insurance company not paying for all of it too. 

 

 

Best wishes, Chuck .

 

 

____________________________

 

 

http://radiotherapy.blog.co.uk/

 

 

 

 

 

 

 

 

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