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516 Views 3 Replies Last post: Feb 23, 2012 10:14 AM by Susan RSS
dawnieol 1 posts since
Feb 22, 2012
Currently Being Moderated

Feb 22, 2012 6:43 PM

A bit confused but VERY grateful!

This may not be a typical topic for discussion but I today find myself in a very strange yet very grateful position and i'd just like to see if anyone else has had a similar experience to mine or can offer any advice as i've been a bit thrown by my recent experience.

 

Mid-December last year I started to feel a bit off it, i'd been suffering from a bit of fatigue for a while but all of a sudden started with the following symptoms: shivery, headache, pain in my jaw, neck, left arm, shoulder, chest, back, I work in a school and just put it down to being busy or a bug i'd maybe picked up from one of the children.

 

These symptoms didn't go away and in fact a few days after they started I was woken up by my headboard banging on my bedroom wall caused by my heart beating so hard and fast.  This lasted all night but I managed to nod off and then go into work the following morning but was advised by colleagues that my face was swollen and slightly yellow and that my left arm was very swollen.  I went to be checked out at A & E who after some tests sent me to another local hospital where I was given a CT scan and an ultrasound.

 

The results showed ecluded and blocked veins amongst other things, in fact it seemed that they were constantly finding more things wrong.  I spent 9 days in hospital where I was started on steroids and painkillers and was discharged and told to await an appointment with a Thoracic Specialist.  This appointment revealed a mass likely to be malignant in nature and which the Specialist thought was a Lymphoma in the space behind my breast bone.  It wasn't very big but it was thought it had been there for some time and became larger the further into the tissue it went.  It had apparently knitted itself into or around the veins feeding my neck and head and was causing a Lyphedema.  The specialist who it turned out would also be my surgeon arranged for me to be to be admitted into a local private hospital as he wanted my case to be treated as urgent and I was duely admitted in early January for a Ridged Bhroncoscopy and a Mediastinoscopy in order for biopsies to be taken from the mass.

 

I listened to all the information given to me, was extremely grateful that, and I quote If I was going to have a cancer, it was a good one to have in terms of successful treatment and have remained positive throughout.

 

Thinking biopsies had been taken I started the post-procedure recovery and was suprised at a follow-up appointment to discover that actually no biopsy had been able to be taken as the very high dose of steroids i'd been put on had shrivIelled the mass so much that no biopsies could be taken and at a further follow up appointment was told that although 99.9% sure that I indeed had a Lymphoma, until it had grown back again (hopefully by 3 months after initial biopsy was taken and by no longer than 6 months) a proper diagnosis could not be made.

 

I attended a Heamatology appointment 2 weeks ago, the results of which were inconclusive and today had a chest xray which is now showing that my chest is clear.

 

This is now where I have hit a problem in terms of my emotions.  I know I should be feeling happy and relieved, this is such positive news, but i'm really struggling with the whole situation now.  Barmy I know but I was just wondering if anyone has been through anything similar and who can help me past this?

Moderator_Renata 313 posts since
Sep 12, 2008
Currently Being Moderated
1. Feb 22, 2012 7:37 PM in response to: dawnieol
Re: A bit confused but VERY grateful!

Hi dawnieol,

 

Welcome to Cancer Chat.

 

I can understand why you are having problems emotionally. Even though you've had some good results, you have still been through an extremely traumatic and worrying time.

 

I hope someone who has been through a similar experience will be along soon to chat.

 

Best wishes

Renata

Cancer Chat Moderator

angelinthemaking 310 posts since
Jun 6, 2011
Currently Being Moderated
2. Feb 23, 2012 1:07 AM in response to: dawnieol
Re: A bit confused but VERY grateful!

Hello dawnieol,

 

What great news! What confusing news! Although my situation is very different it's similar enough to understand the curious mixture of emotions  when a cancer journey heads off in a totally unexpected, albeit delightful, direction.

 

I've been writing a blog for a while and these posts may strike a chord with you...

 

http://todaywasntallaboutcancer.blogspot.com/2012/01/fighting-chance.html

 

http://todaywasntallaboutcancer.blogspot.com/2012/02/men-at-work.html

 

We have a great local cancer charity here with a drop in centre where there are counsellors to talk to and you may have something similar nearby, or try the McMillan helpline maybe to discuss how you feel...

 

May lots more good fortune come your way

 

Angelinthemaking

Susan 734 posts since
Oct 18, 2011
Currently Being Moderated
3. Feb 23, 2012 10:14 AM in response to: dawnieol
Re: A bit confused but VERY grateful!

Hi Dawnieol,

 

What a rollercoaster ride we do go on. I think that while we are being diagnosed, getting appointments sorted, attending hospital, going through surgery, recovery, arranging treatment, attending appointments, looking towards the next hurdle.......there has always been something to focus on isn't there?.  Only now that kinda comes to a slow stop and you end up thinking, ok so what now?  Well I think now we just get on with the rest of our lives.  Having said that this is the time when we look back and reflect on all that we've gone through....or at least that's what I've done.  I kept a photo album of me over the last year or so,and I flicked through it the other day, bloody hell have I been though so much, but did I think about it at the time?  nope i just charged on and got on with it, but now I have to think Well done me, I went to work every day, i did my best, my wee body has had surgery, chemo, radio therapy, I've been underweight, I've been overweight, I've been bald, I've just been through more surgery.  So yes you will face mixed emotions and that's ok, so give yourself time, but focus on the positive things, you've done it, you have good results, keep that in your mind, you won't be happy all the time, but when you feel yourself getting down think of all you've achieved and pull yourself back up, you can do it, you have done it, and for now all is good, so keep that firmly in mind.

 

Come back to us if ever you want to talk about it, how you feel won't change overnight but you do have the power to control it

 

Take care

 

S x

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