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Hi everyone,
just found out this after i have primary liver cancer (rare apparently) was told 18 months ago
not to worry too much as PLC is rare and at 44, unusual.
Usual 6 month MRI last week, called back today to be given the news.
Just broke news to girlfriend - not a peasant experience, i just about held it together, but still in shock.
Anyhow just felt like sharing, dont know why, but just did.
Not sure who, if , anyone is online
Regards
Steve
Hi Steviea34,
I'm very sorry to read about the tough time you are going through.
I hope another Cancer Chat user who has been in a similar situation, will be along soon to chat.
Or, if you are based in the UK, you can call our specialist nurses on: 0808 800 4040 Monday to Friday, 9am to 5pm.
They will be happy to chat about what you are going through and offer advice and support.
Best wishes
Renata
Cancer Chat Moderator
Hi Renata,
thanks for the reply, still trying to get my head round things , will probably
give them a call soon.
Regards
Steviea34
Hi Steve
So sorry to hear your have liver cancer and hope the shock of diagnosis will ease a little soon. It's like being punched at first and feels so unreal.
I hope that you'll soon know what your treatment plan will be so you can move forward and know what will be happening. It somehow often gets easier when you start doing something about your illness and take away that awful helpless feeling.
If you have taken the advice given to you and contacted the nurses, I hope they were able to help and answer some of your questions.
Let me know how you get on and my best wishes to you and your girlfriend.
Love
Carrie
Went to hospital today to discuss options only one really - we will try SORAFENIB,
I know there is no cure now, kept telling myself there was something that could be done-
but alas.
Has anyone had any experience of SORAFENIB? if so please let me know if you beleive
it to be worth it?
Went to the hospital today using trains and buses rather than drive. Came out the hospital
in a bit of a daze and felt so alone.
As usual no seats, standing room only - looked around kept smiling at people, just wanted
someone to smile back - no one did, just felt so lonely.
Anyone out there questioning if there is life after death , used to think maybe there was - but
now i am not so sure - Be grateful to hear what other people think, or is it just me asking morbid
questions
Take care all
Steviea34
Hi Steve
I'm so sorry you have had such bad news - it's one of the two things cancer sufferers dread to hear. I don't know anything about the drug you mention but hopefully someone will come along who is having this treatment and can give you some insight. It's probably worth giving it a try unless it has very adverse effects for you but no doubt your medical team will be monitoring all this.
What a pity you had to go to your appointment alone. I remember all too clearly how I felt after some of my consultations when I just couldn't get my head around all that was going on - you feel as if you're living on another planet amongst aliens. I think watching other people just getting on with life when you feel so.....(how can you describe the feeling) is such a surreal thing to cope with.
No you're not being especially morbid but are starting to understand your situation and there's nothing morbid in that. People often look at me a bit strangely if I talk about death and don't understand that for cancer sufferes it's a distinct possibility, not something vague in the future. Many of us wonder what will be in store for us and we are all entitled to our own beliefs and the comfort we gain from them. Please, if you feel lonely, get back to me. There is no reason to feel alone as many of here are in the same boat as you and the rest of us are trying to push to the back of our minds that one day we may be.
I hope your girlfriend is managing to cope with your news and that you are taking care of each other.
Love
Carrie
Hello Steve, hope you are doing ok.... have you started the treatment yet?
I see you helping out a lot with the other messages, people who are looking for help and a listening ear.
I myself have lung cancer, stage 4 so not good.... same as you really.
How are you coping with all this? i was so shocked at first but once i had excepted my fate changed compleatly, rather than being frightened as a was of what was to come i just welcomed each day with, "thank god i woke up".....
I still think this every day when i open my eyes in the morning, i lay there and feel really happy that i get a chance to see my husband and give him a cuddle and look after him the best i can for another day.
I know the day will come when it will be him who then has to be the one to look after me, but untill then i will make his favorite meals spend every day sitting talking and just being together.
How are you now feeling about life after death? i myself am a strong believer in this maybe thats why i am not afraid to die, we all will meet again one day.
I hope your girlfriend is supporting you and looking after you.
Thinking of you, love Deb.xxx
Hey,
How are you doing? Can't comment on the drug you're talking about but i was wondering if your treatment has started and how you're finding it? Wouldn't it be nice if everyone who "chatted" on this site lived a bit closer together, what a humdinger of a party we could have.
Hope you're keeping well, keep in touch
S x - here have an extra one since no-one smiled at you on the bus (bloody miserable buggers) xxxxx
Hi Deb, Carrie and Sue,
thankyou for your kind thoughts and words, i started the tablets at 4AM Saturday, no
side effects at present, or none thats detectable, probably given a placebo with my luck!!.
I think i am coping ok at moment, still at work, although taking a few weeks holiday to get a few things sorted out.
Girlfriend i think is ok, till we start to talk about the practical things, i.e her moving on, what i wish to happen with my
remains etc.
Last night a mate phoned me after hearing the news, he fitted a double gas oven bout 10 months ago and one of the
ovens keeps going out, i joked that if i was going to use that for my cremation, with his workmanship it would take
me about 3 years to be done, he was in hysterics - but i dont think girlfriend appreciated it that much.
Sorry if this offends anyone, probably my way of dealing with it, after all getting sick of the same conversations.
I am not making lite of my terminal illness, and yes, i am terrified of the end and all that brings with it.
Debs, i beleive you were talking about life after death, would be good if people could share their points of view
either way on the sublject, although open minded i am still not sure which way to "vote" on the subject.
Has anyone heard from JackHolly, i have not been on here for last few days, so just checking he is ok.
Blessings People
Steviea34
Hey Babes,
good job you've not put your head in that oven then, would take a while.....maybe you need to put an extra shilling in the meter to get it to work (now I know you are ages with me and I know you will remember gas meters and shillings).
Glad to hear you've still got a sense of humour, I think it helps, it did with me anyway.
Now life after death, and this is only my view...... do you not think that this might be "hell" here and when we go we go to a better place, lets face it do you know of anyone who's come back?? And i don't think we come back as dogs/cats/worms etc... now I should know this from church but maybe my mind drifted a wee bit but does it not go along the lines of "he who believes in me shall have eternal life yada yada yada" - my minister did not say yada yada yada just incase you're wondering. I'm not suggesting you should rush off to join the church, but maybe keep an open mind.
And can I say something else without you being offended? Now I could leave here and get squished by a bus tonight and I've made no preparation, no-one is going to hold you to a day but I hope you don't sit and look at a calendar counting down the days, does it not ease a different kind of burden knowing you have to plan? Sorry, but that's how my mind works, my family call me controlfreaksoozy which is a bit unkind of them.
Re Jack - not heard from him, although I send private messages, I hope I've not driven him to drink!! Have you heard from Pat (Cougar69), not heard from her either. What a wee group we are becoming....friends in battle.
Luv n stuff to you all
S x
Hi Kimmiddle
I hope you don't mind me butting in but I just wanted to let you know that whilst Stevie might be reading his mail he's not been replying for a wee while, not even to his private messages.........so if you're around pet let us know how you're doing eh? We're worried about you.
S x
Hello Steve,
i hope you are well and the reason you have not been around for a while is because you are busy....x
What lovely weather we have been having, hope you can get out and feel the sun on your face.
Hope our friend Jack will be back to offer you support and more of his lovely stories, and Susan, Tony and all the other friends.
Love Deb .XX
Hi Deb,
Hope you're well.
Stevie has gone a bit AWOL, we'll try and track him down via PM's.
Speak soon
S x
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