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Hi I read your post on how you had a kidney cyst then 3 years later found it to be malignant. well 3 years ago i was told I had one but told it was just small and a simple one-no need to follow it up etc. however pains got alot worse in Dec 2011-finally got a scan now been told its a complex 5cm cyst ot has grown and has calcification in it. waiting for ct scan. what i wanted to ask was -did they know from the ct scan that it was malignant-or did you need a biopsy first etc.So worried now
Nigela x
Hi there Nigela
I know that you are worried about this i was completely taken aback when they said that they knew about the cyst but did nothing about it as they believed it to be 'just a cyst' nothing to worry about
i should have been told about it there should have been some kind of follow up there was nothing
I was never away from the docs complaining about this pain and that pain
after the ultrasound and finding the cyst had got 'significantly bigger' that was their words, they wanted me to go for a CT scan as they were now woried about it
i had the ct scan done and was shown the scan on the computer
i was told then that it was not a cyst it was infact a tumour
i had a meeting with my consultant. and he said that he wanted to remove my kidney i asked him did he think it was malignant and he said that in his vast years of experience yes he thought it was maligant biopsy proved this to be the case
he said that it had just been caught in time
so im sure that you did not want to hear all that but that was what happened to me yours could be completely different and i do hope so in some cases they are able to take the cyst away if it is just on the side of it mine was on the side and also through the bottom of the kydney as he said it was feeding from the kidney and getting larger.
go back to your doctor and tell him that you are worried and see if he could shed any light on it if you are waiting on a ct scan let them know that you would be available if a cancellation comes up it would be good to have your name down on a waiting list just in case
i do hope it goes ok for you let me know big hug on way to you X M
Thanks so much for getting back to me. Yes I am sorry to hear about what happened to you-so glad it was caught in time. I too have ben back and forward to my Doctor for years with these pains-usually being told it would be IBS! How big was yours if you don't mind me asking. I still think 5cm sounds big to me for mine -it had grown in the 3 years.It cannot ever have been a simple cyst-the shape of it is like a dumbbell apparently and it has calcification in it.
will keep you informed
thanks again
Nigela x
Hi Nigela sorry ive not been on for a wee while
I think mine was 5cms too ( my head is like mush at the minute) on the side of it and also inside it. Im nerously waiting on my 6 month scan follow up which is actually this month but i have not got a date yet. getting sort of anxious about it now but when i get a date i will let you know
have you heard any more word about when you are going back or have you got a date yet for scan etc
i know you are worried but if you have not heard anything yet give them a ring to see what is happening or if they can give you a date or time scale.
keep us informed how things are going i hope you get news soon
x M
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