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hi, coming on here makes me feel like I am admitting he has cancer, I hope I am wrong... My husband who is 42 has been complaining to his GP for over 6 months now of a clicking sound in his ear and his ear sometimes hurts. He went back for 3 appointments until the GP sent him to an ENT. The ENT checked him by putting this thing down his nose to the back of his throat, sorry not sure about the name. And then his tune changed. He siad, not sure if this is 100% correct as my husband went blank and didn't really take it all in, he said there was a growth on the adenoid but only on one side and that was closing his eustachian tube. He said this was not normal in adults but was in children. He said it would need "scraping"?? out and testing. So the next day we suddenly got an urgent hospital referreal for suspected cancer!!! for this thursday and now we are really starting to panic. we have 3 young children and this has just come out of the blue. Does anyone on here know anything about this? I made the mistake of checking on the net and there are horror stories saying that cancers in that area are rare and 5 years to live etc... He has overall good health. Please someone try to reasure me, I have not slept in 3 nights properly with the worry. Thankyou for your time x
Aaw bless u all.Im not familiar with this.But I do understand how your feeling,the waiting,worrying,sleepless nights etc.Thursday cant come quick enough eh!You just gottta take a deep breath and hope for the best results.Emotionally dealing with it is the hardest thing ever.But you can do it!Fingers crossed for you all.x
Thank you for replying, just being able to talk about it helps. I will keep you posted on what happens on thursday. I think it's the urgent cancer referral letter that has made me panic. x
Hi susanash,
Really sorry to hear about your worries. Most people on here will know about waiting for test results and imagining the worst - it's what we do unfortunately. I don't personally know anything about this type of cancer but I do know that my partner had a tumour at the base of his brain about 15 years ago which turned out to be benign and he has been fine ever since having it removed. His symptoms involved a misplaced tongue. I guess the point I am trying to make is that, although it is very very worrrying for you, they are testing for suspected cancer - there is a chance that it is benign and you may as well try to believe it is because there's nothing else positive that you can do until you have the results of the tests.
Good luck and hugs.
Jan x
Hi Susanash,
You'd be worried more and for longer if the appointment took weeks to come through, so look on this as a good sign that they are acting quickly and can put your minds at ease. The intranet can be a curse at times, my Grandad used to say "a wee bit information can be a dangerous thing" and he's right, we fling in a few symptoms and up pops a whole list of horrendous things it could be.
Thursday isn't too far away, try and stay focused till then, the worry isn't doing anyone any good.
Come back and tell s how you get on, or don't wait till then if you just want to talk, we're always around
Take care
S x
Thank you all for your kind messages. I will let you know what happens on thursday and will try to keep calm until then. Every day that passes I feel a bit more calm and more prepared for what it may or may not be. I don't want to walk in there thinking it is all ok in case it isn't, so I am trying to prepare myself for both situations. Thankyou all. x
Hi, back again. Sorry to bother you all with questions but I have one more before tomorrows appointment.
It's just that, I know this sounds exagerated, but this has probably been one of the most stresfull weeks I have ever had. I have not slept with worry, and I know I may be reacting over the top but me and my husband have both had a very wide range of different emotions this week.
I was reading on the internet that when you are referred for a 2 week urgent referral, that the doctor is meant to fully inform you of this and why he is sending you,etc, also that you should get support over this week leading up to the appointment if needed.
The problem is, the ENT never said to him that he was getting sent for an urgent referral, his words were: I will send you to a collegue of mine to take a look, this will need to be "scraped" out and assessed. The word cancer was never even mentioned.
The first mention of it possibly being cancer was on the urgernt referral leaflet sent to us from the hospital.
Sorry to go on, buy my questioni is to anyone who has had an urgent referral for suspected cancer: Was it fully explained to you, why you were being sent? Were you offered any kind of support to get you through the week leading up to the appointment.
I only ask as I sort of feel like we have not really been given any explanations, and weren't even told it was going to be an urgent referrel. Is this normal? thanks
Hi
You're not bothering us at all. Firstly I will apologise for my short reply but I have a blinder of a headache and just turning in for the night, only logged on to pick up an email from my daughter to say she's arrived safely in Canada.
My best advice to you would be to have a cuppa and get a good night's sleep, tomorrow will come in its own good time, and you worrying yourself silly now will have no impact on the results whatsoever. Your hubby is getting good treatment (unlike some you will read about) and I'm sure no results will be conclusive until they have done some tests etc, so go in tomorrow and see what the docs have to advise you of.
Now my fingers are crossed for you, so do come back and tell us how you both get on.
Try and not worry (easier said then done, but we have been there so know what you're going through)
Sleep well
S x
Hi Susanash
I don't think you are exaggerating at all - waiting to find out whether or not you (or your loved ones) have cancer is one of the most stressful times - I can honestly say that for me it was the worst couple of weeks of my life. As for urgent referrals, I was sent for one but was not told why and was certainly not offered any support. Cancer was not mentioned to me, although I suppose I was myself aware of it as a possibility. Unfortunately the consultant who received the referral, after a brief examination decided it was not urgent and delayed tests - I finally, after numerous delays, got a biopsy 9 months later by which time it has spread from being pre-cancerous to stage 3B. So my advice to you would be that until you know exactly what it is, make sure it is treated as urgent. I have found that if you want information sometimes you really have to push for it - there does seem to be a rather patronizing attitude within the NHS that the patient will not understand and cannot deal with the truth. Incidentally I agree with you earlier comment - there is a saying isn't there about hoping for the best but preparing for the worst and I have found that to be the most useful approach.
Well I am hoping for the best for you and your hubbie tommorrow but if the news is bad I hope you will come back here for whatever support you need.
Jan x
Thank you Susan, you are right, my mind is going into overdrive, I think I will take a couple of kalms and go to bed and stop worrying, well try to at least. I will definetely come back tomorrow to let you know what they say tomorrow. Thank you so much for taking the time to answer, hope your headache has gone by the morning, sleep tight. x
Thanks Janojan, It is a worry not knowing if they are going to miss something tomorrow. As much as I want it to be good news, I want it to be the right news and not a mis-diagnosis. So I will persist any test are made. thankyou so much, I will try to sleep now. But I know it won't be easy. At least tomorrow we will hopefully know something. x
Thanks Susan, yes I did get some sleep, my hubby didn't though. Just counting down the hours now to tonight. I don't want to appear rude by not asking you all about your own personal circumstances. I have been so stressed I just wasn't thinking, so sorry. I do hope you are all doing welll with your own diagnosis etc.? speak soon, x
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