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7,326 Views 7 Replies Last post: Jan 10, 2012 8:43 PM by Tabby RSS
Tabby 3 posts since
Jan 9, 2012
Currently Being Moderated

Jan 9, 2012 6:37 PM

Xeloda

I have just started Xeloda 2,300mg to take twice daily (4.600 in total) for stage 3 colon cancer as an adjuvant treatment after successful surgery in November.

Worried about potential side effects. But realise that not everyone gets them. Would be interested to know how anyone takeing this as a single agent find it?

Moderator_Jane 971 posts since
Sep 12, 2008
Currently Being Moderated
1. Jan 9, 2012 8:38 PM in response to: Tabby
Re: Xeloda

Hi Tabby

 

Welcome to Cancer Chat. There are some very kind and helpful people here. I hope some of them will have experience of this drug and will be along to chat to you before long.

 

Best wishes

 

Jane

175 posts since
Jun 29, 2011
Currently Being Moderated
2. Jan 9, 2012 11:07 PM in response to: Tabby
Re: Xeloda

Hi

I am just starting round 7 xeloda with good results, had 4 lots of iv chemo without success, but this stuff has shrunk my original breast lump to less than 12mm so much so that they are going to operate to remove on friday and it has shrunk so much that theyhave had to put a clip on it so that they can find it in the operation.My lymph nodes have stayed the same so they are having to be taken away also.     It is a bit of a regime to take, but I am so glad that i perservered with it.

Please, please make sure you moisturise your whole body daily and pay particular attention to your hands and feet day and night and drink plenty of water, I hvent rested like I should do but that is just me.  I didnt have the quality of life with the iv stuff but I have with Xeloda.I  have even managed to go back to work whilst taking it. Im going to be off again for a few months as having the op on friday, 6 weeks recovery and then radiotherapy. It has been a hard journey but the Xeloda has given me more freedom and a quality of life.  i just hope that it has all been worth it on friday.  I hope you have success with it too.

xx

1,879 posts since
Dec 23, 2009
Currently Being Moderated
3. Jan 9, 2012 11:17 PM in response to: Tabby
Re: Xeloda

Hi Tabby,

 

I was a rare case (also with stage 3 Colon Cancer) but was only on Xeloda for 4 days before chest pains forced it to be stopped.  I am sure there are many hundreds, if not thousands that take Xeloda successfully however my advice to you is if you get any unusual pains then use the number they tell you to ring. I believe that for any standard side effects they tell you to ring your hospital but for chest pains you ring 999. Do not feel bad, I spent the 10 minute ride in the ambulance apologising to the paramedic in the back with me however they really don't mind. As he said it is the drunks on a Saturday night with a bruised knee that gets their goat not the cancer patient with chest pains.

 

I am glad you have found us on here - please continue to let us know how you get on as it will help others to monitor your progress.

 

Much Love

 

Tony xxxx

lindiloo 16 posts since
Mar 14, 2011
Currently Being Moderated
4. Jan 10, 2012 12:41 AM in response to: Tabby
Re: Xeloda

Hi tabby,

Im a breast cancer patient and was on this chemo as part of a clinical trial back in 2007,  (Tact2 trial) the regime i was  allocated  from the Marsden was"Arm 4" which was split into 2 seperate parts this was  4 x Epi accelerated followed by 4x Xeloda, when i was on Xeloda. I was taking 4,000 mgs  a day, i think the doses are calculated on a persons body size/weight ect, and  like you the tabs were split into 2  seperate daily doses,

Xeloda is quite a kind chemo in that it doesnt cause any hair loss, and as it is taken orally  it  doesnt cause any problems with your veins ect , i was told by my onc to try and make sure i took the tabs at even intervals 12hrs apart ,and to to make sure i took them "after food "eating at least 30mins before taking, i found that just some toast and cereal was enough to avoid any stomach/digestive  probs as sometimes it was hard for me to eat a bigger meal at the times i was taking the tabs because of the spaceing out the doseages ,

 

The main potencial problems SEs wise apart from  fatigue and a drop in blood count, which is common with all chemos, can sometimes be sore hands and feet , though this doesnt always affect everyone,  i was advised by my oncologist to keep moisturising my hands and feet daily with either E45 cream or  another very good moisturiser  called "udderly smooth" which you can buy online from places like Amazon,udderly smooth is used mostly for cows udders  ,but  is also a brilliant moisturiser for people and i still know lots of breast cancer ladies who use udderly smooth when on Xeloda as it realy helps to stop the hands and feet from cracking and becomeing sore.

Luckily for me, i didnt suffer wth any real problems with any soreness of my hands/feet so definately the moisturising often and daily  realy did help.

All in all for me i can say i found this chemo quite kind compared to others  and also because Xeloda  is a very selective chemo and targets specificaly  only "cancer cells" and not our normal cells i found for the most part i was able to carry on with my life as near normal as possible.

Xeloda realy is a very good chemo, and i know lots of breast cancer patients who have been on this chemo for quite some time and have had very good results with it, there is also lots of info on Xeloda on the Xeloda.com website  which may also be of help to you with any other questions you may have.

Good luck  to you tabby and all the very best to you .

Linda x

Mimi1 15 posts since
Aug 9, 2011
Currently Being Moderated
5. Jan 10, 2012 3:37 PM in response to: Tabby
Re: Xeloda

Hi Tabby

I had Apr surgery Sept 27/2011. I started Xeloda tabs 4000mgs daily 22/Nov for 2 weeks and then a week off.When I had my bloods done prior to getting my 2nd cycle of tablets my White platelet count was low(64) so I had to wait another week.Next blood test was ok so had my 2nd cycle.Today been to hospital and blood count low again(60) so again delayed a week.

I have been o.k.,just a bit tired and some diarrhoea,but no problems with hands or feet.Really hoping it stays this way.

When you read about the side effects some people have to endure,I feel very lucky.

Hope all goes well for you and you continue to post.Are you fully recovered from your surgery?

Best wishes

Mimi

 

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