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5,488 Views 6 Replies Last post: Nov 14, 2010 8:41 PM by mountain_man RSS
3 posts since
Sep 27, 2010
Currently Being Moderated

Nov 7, 2010 10:15 PM

radioactive iodine treatment for thyroid cancer

Help!!!

 

 

I was diagnosed with papilliary thyroid cancer in june this year.

 

 

I am now minus a thyroid and on liothyronnine. I have just been referred to see an oncologist to discuss radioactive iodine treatment. I have to admit the thought of it scares me for a few reasons:

 

  • Do i really want to glow radioactive - surely it could be harmful?

  • I have three children and i hate the idea of not being there for them and in solitary - I know i should think more long term

  • having more treatment is another validation that i have a problem, something that i am trying my best to stick my head in the sand over!

 

 

I had never heard of thyroid cancer and i dont know anyone who has had it, so any advice anyone can give regarding this disease is appreciated.

 

 

Kind regards

 

 

Mrs P

harryeleri 1,220 posts since
Apr 28, 2010
Currently Being Moderated
1. Sep 29, 2010 12:48 PM in response to: mrsp
Re: radioactive iodine treatment for thyroid cancer

 

Hi there

 

 

Sorry i dont know anything about your condition but would just like to wish you luck.I see you have found the other thread and hope someone will answer there soon.

 

 

Good luck

 

 

Rose xxx

 

 

donnington 3 posts since
Oct 26, 2010
Currently Being Moderated
3. Oct 27, 2010 4:56 PM in response to: mrsp
Re: radioactive iodine treatment for thyroid cancer

 

Hello Mrs P...My name is Kate i'm 34 years old...On the 5th Oct i also had my thyoid removed & lymph nodes removed from both sides of my neck.....The operation went well, but i am still in pain...The scar is healing nicely, but it's what's happening inside my neck that hurts...My neck keeps ciseing up & still quiet inflammed, & my chest area is still very sore & tender....feels like really bad sunburn....How long did yours take to heel up??? My scar is a U shape from ear to ear........I have also got to go for the iodine treatment in a couple of months......& stay in hospital for 4/5 days...not lucking forward to it!!!!!....Have you had your treatment yet???? How did it go?? Any side effects???.....Speak Soon Kate...xxxxxx

 

 

452 posts since
Sep 12, 2008
Currently Being Moderated
4. Oct 28, 2010 7:30 PM in response to: donnington
Re: radioactive iodine treatment for thyroid cancer

Hi Donnington,

 

 

 

 

 

Our information nurses would like you to know...

 

 

It takes a few weeks to fully heal after an operation and the symptoms you describe are most likely to be part of this. If you are having symptoms that aren't getting better or are worrying you it is always worth getting them checked out by your doctor or nurse. Then they can either reassure you it is part of the healing process or give you the treatment you need.

 

 

Best wishes,

 

 

Renata

 

 

Cancer Chat Moderator

grumpy 792 posts since
Aug 10, 2010
Currently Being Moderated
5. Oct 28, 2010 8:06 PM in response to: mrsp
Re: radioactive iodine treatment for thyroid cancer

 

dear mrs p

 

 

I am on here now with breast cancer  but in my early 20s they offered me radioactive iodine or surgury and as i am a total  baby about operating tables i went for the iodine.It was about 15 years ago so i may be glossing over things a bit but as far as i remember apart from the weird element of not letting any one to close for a while (not long)it was a doddle.I am a big fan of anything that does not hurt.I should mention i had an overative thyroid rather than the cancer and my breast cancer is genetic not a result of earlyer treatment.head in the sand is my favorite place so i know how you feel so good luck with whatever you decide 

 

 

3 posts since
Nov 14, 2010
Currently Being Moderated
6. Nov 14, 2010 8:41 PM in response to: mrsp
Re: radioactive iodine treatment for thyroid cancer

Hi. Like you i'd never heard of thyroid cancer, but a lump on my neck turned out to be papillary cancer. once theyd cut it out they let the scar heal for ~ 1 month & got me back for radiation. I had to stay in a small room in the hospital for 3 days then told not to go near kids for a couple of days.  After that i got various followups & seems ok now. I probably feel better now than i have for years because i'm spending some time in the gym - i could face going back to karate but hard work in the gym feels nice (afterwards!).

 

You should have a look at  The Butterfly Thyroid Cancer Trust: a patient-led organisation offering information, support and encouragement to people in the UK affected by Thyroid Cancer www.butterfly.org.uk  they have peoples stories & lots of chat about radiation, treatments etc.

 

Good luck

Chris

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