Mar 23, 2010 2:08 AM
My family and i lost my mother yesterday. She was diagnosed with lung cancer in January this year and throughout the whole process we have felt that the only consistant thing has been the total incompetance of the NHS when it comes to dealing with lung cancer - Following her diagnosis in January we had to fight just to get her some kind of action plan for treatment - then two days after finally getting some action and initial radiotherapy treatment planned in we were told that the cancer was terminal and that there would only be one course of radiotherapy with the intention of prolonging my mothers life and relieving her symptoms. On Tuesday last week we were given a prognosis of about a years survival for my mother. As she had been in hospital due to shortness of breath when the prognosis was given it was decided on Friday to move her into the hospice within the hospital so she would be more comfortable and in a more peaceful atmosphere whilst she bore the effects of the radiotherapy.
On Saturday my siblings visisted my mother along with several friends and relatives - they all said that my mother was in good spirits and as well as could be expected. Her last visitor left at about 6 30 Saturday evening. My brother received a call a few hours later saying my mothers condition had detiriorated and that she had been given mild sedation but that he should come to the hospice. My mother never regained conciousness and died Sunday morning - about 2 hours after the level of sedation had been increased to make her "more comfortable". Due to the lack of urgency shown by nearly all the clinical staff and the general lackadisical attitude shown towards my mothers treatment prior to her admission to the hospice we have been left devastated and confused and very concerned that our wonderful mother went from laughing and joking and looking forward to her treatment and release from hospital to comatose and dying within a matter of hours.
My own personal concern is that as she was in a hospice where they specialise in helping people move from this wold to the next and despite the fact she had been admitted for clinical reasons she somehow was "helped" on her way during one of the few periods when she had no friends or family at her bedside. I hasten to add that this is just a concern at the moment although due to our concern we have requested a post mortem to be carried out as her death was so sudden and unexpected.
I know that following berevement it is not unusual to look for someone to blame and to be angry and frustrated but i would like to know if anyone else has any similar experiences. And can i also say that this post is not meant to denigrate or decry the valuable and hard work done by so many nurses and carers in hopices throughout the country or to scare or alarm any other forum users, i am just very concerned about the events regarding my mothers death. Thank you for taking the time to read this and thanking anyone able to reply in advance.